By Exit Desk
Laryngomalacia is the most common cause of noisy breathing in infants. Many parents don’t hear the term until the moment their newborn begins to struggle. Today, Coping With Laryngomalacia — a New Jersey–based, all-volunteer nonprofit — is sounding the alarm. Rising demand, increased severity of cases, and financial strain have pushed the organization to issue an urgent request for community support.
Laryngomalacia affects the soft, immature tissues of an infant’s upper airway. When a baby inhales, the tissue collapses inward, creating the hallmark high-pitched sound known as stridor. While some children outgrow the condition, others require surgery, oxygen support, or long-term monitoring. For families, the diagnosis often brings fear, exhaustion, and significant financial strain.
Founded in 2010, Coping With Laryngomalacia (CWL) was started by parents who lived through these challenges themselves. The organization now provides nationwide support through care packages, airway-specific adaptive pajamas, milestone kits, medical information tags, and a virtual caregiver support group. Every program is funded entirely through donations and awareness-shop purchases. Items like Lu the Laryngomalacia Lamb, Trey the Tracheomalacia Tiger, and medically tailored clothing help keep these programs operating for families who are already overwhelmed.
This month, CWL released an urgent message: the need has surged, and resources are stretched thin. More caregivers than ever are applying for help. As an all-volunteer nonprofit, CWL depends on community donations, in-kind contributions, and small awareness items to meet those needs. Without additional support, they risk being unable to deliver essential care packages to parents facing frightening medical situations.
For newly diagnosed families, CWL also runs the Caregiver Connection, a virtual support group offering a safe place to share experiences, learn about treatment options, and connect with others who understand the emotional and medical realities of airway malacia. These resources are completely free to caregivers.
If you’d like to support families living with lymphatic malformations and help fund treatment, research, and direct-support programs, you can donate through Coping With LM, a national nonprofit dedicated to this rare disease. Their donation page is here: https://www.copingwithlm.org/donate
Coping With Laryngomalacia is headquartered in Belford, New Jersey, and has supported families nationwide for fifteen years. Their message is simple. The need is rising. Support is critical. A small donation can make a meaningful difference for a child struggling to breathe.
📅 Posted: December 4, 2025
